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Surviving And Thriving OT

Today I had the pleasure of presenting on a person, who I have had great respect for since I learned about her a few years ago. Her name is Joni Earekson Tada and she is a quadriplegic (now called tetraplegia). Joni was injured in a diving accident and severed her spinal cord at the C4/C5 vertebra. She was 17 years old at the time and in that moment her life changed forever. Because of her severe injury, http://www.joniandfriends.org/jonis-corner/jonis-bio/
Joni lost the use and feeling of her legs, arms, and hands and was left in a wheelchair. Obviously, this drastically changed her daily routine and occupational abilities. OT's began working with Joni during her rehabilitation and really focused in on helping her to re-discover meaningful activities to her life. One of these was learning how to paint with an adaptive tool called a mouth stick. Using this mouth stick Joni was able to learn how to write, paint and type, something that she described as "enormously satisfying and productive. Although Joni still is faced with many challenges on a daily basis, she has a support team made up of two assistants, her husband, and her friends that help and support her. Joni hasn't let quadriplegia slow her down in the least in enjoying her life. She is a well-known painter, the author of over 50 books, and also a grammy-nominated artist for her song "Alone, yet not Alone." She has inspired and impacted millions with her story of hope not because she simply overcame insurmountable odds, but because she still sees her life as full of blessings and opportunities. If you would like to learn more about Joni Eareckson Tada check out her website
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Love, it’s a feeling that no one can truly describe. Love is not something that you can hold and touch in your hand or can define in black and white terms. So how does love to translate to an adult with autism? In the documentary Autism in Love, the filmmakers follow 4 adults on their as they search and grapple with the experience of finding love.
The movie closely follows Lenny, Lindsey and Dave, and Stephen, who are all in different stages of relationships. Lenny is a single adult who longs to find someone to be with but believes that his autism is getting in the way and automatically makes him less successful and less desirable for any woman to date.  Lindsey and David are a couple who have been together for 8 years. They both are quite independent, brilliant minds and are trying to figure out if they are ready to take the next step and get married. It was fascinating watching this couple and their dynamics and how they try to express themselves and show affection to the other as they process what marriage would mean   Stephen, an older individual with autism, is married to a woman named Gitta who during the filming, dies from a brain tumor. He struggles to understand what that means, as death means he can no longer go and see her in the hospital.
This movie shows raw emotions, frustrations, and heartbreak and

completely moved me because it challenges every stereotype of older individuals with autism. They can indeed deeply love another individual and they feel the depth of emotions that we all do. While expressing those emotions can be difficult, they found their own ways to communicate their feelings. I think that is why I picked this movie, because I wanted to better understand individuals with autism, especially older adults. Many times, we forget that older individuals with disabilities have the same desires as we do, and this movie tuned me back into understanding that. This is important to remember as we work with not only older adults with autism but other adults with disabilities too. This movie has left an impact on me, and I hope that others will watch it and be challenged in their thinking as well. Check out the link below if you are interested in watching the movie!
http://www.pbs.org/independentlens/films/autism-in-love/

References:
Fuller,  M.  (Director),  &  Heilveil,  I.  (Writer).  (2015).  Autism in Love  [Motion picture]. United                    States:  CG Entertainment .
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Clinical reasoning is just one of those things that take time to develop (or so they tell us in OT school). It's not something that we are born with, or go into fieldwork automatically knowing what to do. Clinical reasoning takes hands-on practice and real-life scenarios to play out, and maybe even learning from a few mistakes that have been made along the way. It is defined as "the thought process used to evaluate clients and design/carry out intervention.  Involves thinking and feeling and is used to make decisions in every step of the OT process." This means that everything that I am learning right now, in my classes, assignments, and tests will impact my growing clinical reasoning. I can also begin working these clinical reasoning muscles by looking through our OT lens and begin to ask questions and formulate answers or reasoning. One day this will all come naturally but until then...Practice makes perfect. 
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Imagine a scenario with me for a minute. You are a teenager that has to go to a doctor's appointment. You walk into the office with your with your mom, already uneasy because the doctor's office is never a pleasant experience for anyone. Everyone looks up when you walk in and either stare boldly or look away as if embarrassed. After awkwardly waiting for a while, a nice-looking looking nurse calls your name and ushers you to a little room that looks more like a cell. "The doctor will be in with your shortly," she says. An eternity later, the doctor walks in the room and looks down at you... "hey there little man," he says. You glare at him. As if it wasn't obvious enough, he didn't have to say anything. You explain what has been going on, and your mom asks a few questions. At one point, the doctor looks at your mom and gruffly says,"It's because he's a dwarf, he's always going to have that problem." Can you imagine what you would feel like? Unfortunately, I have a dear friend who knows exactly what that feels like. He has felt the shame and the full-blown embarrassment of being labeled by a disability that only affects his height... nothing else. He is so much more than his dwarfism! Person first language matters and not using it are not only disrespectful, but it is also misrepresenting of the person themselves. Person first language describes the person first and then adds the disability as a characteristic of them, instead of just calling them their disability. This is important not only in our conversations but also should be applied to our documentation as well. It doesn't matter if your patient/client never sees the report you type up, you still must give them the respect they deserve. Our descriptions of people actually reveal the opinion and the heart of the person speaking the words and cannot only damage our opinions but also shape other's opinions as well. Be careful. See your patients as people and look for their gifts and talents! You may be surprised by what you will find.
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Today was a heavy day. Unexpected, but necessary for this journey through OT school. Today the realization that the people that we will work with are so much more than then problems really hit home. Maybe this was because we, as OT students, were able to share narratives from our lives in one class, and then that was connected to our Neuro class for the pre-class assignments. One thing is for sure,  I think we have all been impacted by the stories that we have heard. In a podcast called "Terrible, Thanks for Asking" - "Help Me Remember"  we as a class all experienced the discomfort of how a TBI can impact not only the person who has it but their immediate community, family, and friends. I caught myself wondering how I would feel if someone that I loved most acquired an injury and was forever changed from their old self to a new person who was only a shadow of who they had been in the past. This is the hard reality for many families and the reality of everyday work for the OT's who work with them. The weightiness of the fact that you are dealing with a WHOLE person (their hurts, their needs, their frustrations, their desires) AND their families (how are they coping, how they support, what support can be provided for them as they support their loved one) feels heavy. It feels real. Yet, there is also a sense of excitement in this as well. This class is already supporting each other, practicing things that we haven't even really learned about. The main excitement, however, is that we can be changemakers in our field, and impact our clients, impact OT. If you want to listen to this podcast click on >>> https://www.apmpodcasts.org/ttfa/2016/12/help-me-remember/
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Aimee Mullins stands at the podium of TedMed, one of the keynote speakers for their conference. Although not a Medical Professional herself, she is experienced with the medical profession from the perspective of a patient. During her talk she says something profound, "Adversity isn't an obstacle that we need to get around in order to resume living our life. It's part of our life....Our responsibility is not simply shielding those we care for from adversity but preparing them to meet it well." This coming from someone who, in my eyes, has overcome incredible adversity, more than any I have ever experienced in my own life floors me. This causes me to look a little closer at myself and reflect on what I believe about adversities or incredibly hard challenges. As an OT, the clients that I will be working for will either have already experienced incredible challenges in their lives or if they are just diagnosed, are about to. This provides us with a unique opportunity as OT's. It is incredibly important to be aware of how we talk about the challenges that they are facing. To let the challenge be the focus could actually further handicap or clients. Instead of being problem-solving practitioners that don't run from challenges and instead see adversity as new opportunity to discover new strengths and new talents could easily change everything. For Aimee Mullins, this made all the difference in how she saw herself and her challenges. For us as OT's, this should change how we talk and think about our clients. 
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About Me

Sarah Caitlin
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About me

Well Hello There! If you are anything like me, then you are probably an occupational therapy student (or my teacher, hi Mrs. Lancaster!) who stumbled across this blog looking for an answer you googled. Or maybe for some, you are looking up information on OT school. If that's the case, welcome! I hope this blog will have fun posts (along with some tips and tricks) to surviving OT school and will give you a snapshot into what school is like in my particular program (which happens to be the best!). The best of luck to you!

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  • ►  2018 (6)
    • ►  June (1)
    • ►  March (2)
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  • ▼  2017 (26)
    • ►  June (1)
    • ►  May (16)
    • ▼  April (6)
      • The Unforgettable Joni Eareckson Tada
      • Autism In Love
      • Clinical Reasoning : Practice Makes Perfect
      • The Person must ALWAYS come first in Documentation
      • Thoughts and Ramblings
      • A different look at adversity
    • ►  March (1)
    • ►  February (2)

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